Writer, activist and artist Connie Panzarino was born in 1947 with the rare disease Spinal Muscular Atrophy Type III, formerly called Amytonia Congenita.
I didn\'t know that most children with this.
I didn\'t understand if that meant that I would never walk, or if all it meant was lack of muscle tone.
I was an Amytonia.
Now I had a name for the difference, like being Italian or Jewish.
Throughout a childhood filled with both pain and joy, she strove to define herself: "I knew I was different.
Writer, activist and artist Connie Panzarino was born in 1947 with the rare disease Spinal Muscular Atrophy Type III, formerly called Amytonia Congenita