This book was inspired by my daughter Lilah.
Although she fights open wounds and blisters daily, she is the epito.
These children are often referred to as "butterfly children" as they are internally and externally as fragile as a butterfly.
A one in one million incurable, painful, and fatal genetic condition characterize by extreme fragility of the skin, connective tissues, and mucosal membranes.
Lilah is a 4 year old little girl who was born with Recessive Dystrophic Epidermolysis Bullosa.
This book was inspired by my daughter Lilah